Advice & Support for Fibromyalgia | UK

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Information and Support Groups
Grants
Benefits help for Fibromyalgia
Other Helpful Support

Information and Support Groups

 

There are many support groups, charities, and websites offering help and support to people with Fibromyalgia and their carers.

Here are few of the places people can turn to for help (click the purple text to visit their website):

  • Fibromyalgia Warriors UK Support Group – a Facebook group with thousands of members affected by Fibromyalgia, who share opinions, experiences, and stories.
  • Action on Pain – a UK charity campaigning for people living with chronic pain, which provides a helpline and suggestions for ways to deal with pain.
  • Away with Pain – a UK charity supporting people who live with painful health conditions such as Fibromyalgia, which provides a wealth of information about pain and how to manage it, including a pain tool kit and personal stories.
  • Fibromyalgia Action UK – a UK-based charity supporting people affected by Fibromyalgia through online information about the condition, as well as providing a helpline, benefit support, online forum, and fundraising activities.
  • NHS Fibromyalgia Page – the source of official medical information in the UK, including information on Fibromyalgia causes, symptoms, and treatments.
  • Pain Concern – a UK charity supporting people in pain and providing online information about living with pain, benefits, alternative therapies, how pain affects relationships, and much more including a helpline.
  • UK Fibromyalgia – lots of online information about Fibromyalgia as well as a forum, Facebook group, and magazine.

And our very own support group

  • Fibromyalgia Friends Together – we are a very friendly group of people that meet every 3rd Monday of the month at Bright Hope House in Leicestershire.  We are here to listen and help people come to terms with their illness. You will be made most welcome.  We also have a Facebook Page.

  

Grants for People with Fibromyalgia

 

Below are grants that may be available for people with Fibromyalgia and other disabilities.

 

Disabled Facilities Grant

This is available from local councils in England.  It is available for those with substantial disabilities help with funds towards adaptations to their homes.
Click the link below if you are in Leicestershire.
Disabled Facilities Grant


The Disabled Gardeners Trust

The Disabled Gardeners Trust is there to help gardening more accessible.  They have a simple grant process, and funds things like raised beds, disabled-friendly gardening tools and paths for wheelchairs.  You can find out more by visting the Trust’s website 

Florence Nightingale Aid in Sickness Trust (FNAIST)

This UK charity provides grants for items and services that improve quality of life for people of all ages living with illness or disability — including those with fibromyalgia. Further information is available at: Florence Nightingale Aid in Sickness Trust

 

The Hospital Saturday Fund

This fund seeks to support people with a medical condition or disability who would benefit from the purchase of equipment or treatments.  The Hospital Saturday Fund can provide up to £2,000, however, they like to see evidence of where you have applied to another organisation to part fund.  Examples of things they would fund include reflexology, massages, specialist beds, wheelchairs and hearing aids.  You cannot apply directly and must apply through an organisation such as your local Citizens Advice Bureau. 

Benefits for People With Fibromyalgia

Currently, the benefits landscape is changing.  There may be some benefits which you may be eligible for provided you meet their criteria.  

These can include Disability Living Allowance (DLA) and there are also Personal Independent Payments (PIP) in England or Disability Payment in Scotland.   If your health is such that you require assistance from another individual you may be able to claim Attendance Allowance.

Should your condition impact how much you work there is Employment and Support Allowance available.   If you are employed and you become too unwell to work you should be able to claim Statutory Sick Pay from your employer for 28 weeks.   

For carers there is Carer’s Allowance you may be able to claim if you care for over 35 hours per week provided other eligibility criteria is met.

Please contact the group if you need help and support claiming benefits as we may be able to help. Our June 2023 Newsletter explored this topic in more detail so please take a look at that for further information.

Additionally, there is a lot of information on the Citizens Advice Bureau Website, also or you may which to ask them for guidance and support with any benefit applications.  www.citizensadvice.org.uk

For up to date information and what benefits you may be eligible for, visit Turn to Us – Turn2us Benefits Calculator

We may be able to support you with your benefit applications if necessary.  Please get in touch and Fibromyalgia Friends Together will support you where possible.

Other Helpful Support

 

Access Card (also known as the CredAbility or Nimbus Card)

The Access Card is available to support individuals with communicating any barriers you face accessing things and reasonable adjustments that you need, such as when you are out shopping.  You have to apply for the card and there is a cost.  Reasonable evidence to support your application is required.   Please visit the Access Card website for further information.

 

Blue Badge Scheme

Anyone over the age of 3 who has mobility issues may be eligible for the Blue Badge to help with parking.
This is usually available from your Local County Council in England so you will need to find out from your local council in England for information.  You should be able to find information online or by phone.  For more information if you live in Leicestershire click here.
See our informative resource on how to apply for a Blue Badge.