A study about seeking healthcare for Fibromyalgia
People living with Fibromyalgia are being asked to take part in research
We support people with Fibromyalgia, their carers, families and friends and we raise awareness of Fibromyalgia.
We support people with Fibromyalgia, their carers, families and friends and we raise awareness of Fibromyalgia.
We are a Fibromyalgia Support Group based in the UK for those with the medical condition Fibromyalgia (FM), their friends, families and carers.
We are a supportive community, as we all have to manage the same condition we can understand each other better than most. We also provide information about Fibromyalgia, along with useful resources, support with benefits, as well as with in-person meetings and events.
Please see our About Us page for further information
People living with Fibromyalgia are being asked to take part in research
The next in person meeting of Fibromyalgia Friends Together will be a general catch-up session and a talk about creating safe conversational spaces. It is on Thursday 15th August 2024 at 1.15pm
Our meeting always take place at The Manor, Shuttlewood Clarke Foundation The Manor, Shuttlewood Clarke Foundation. Priory Lane. Ulverscroft. Markfield. Leicestershire. LE67 9PH.
For directions use this Google Maps link:
https://www.google.co.uk/maps/place/Shuttlewood+Clarke+The+Manor+and+Activity+Centre/@52.6962633,-1.285726,15z/data=!4m5!3m4!1s0x48775f59ad951c85:0xb8ae18bea60cebef!8m2!3d52.6956924!4d-1.2737688
If you are unable to find us, then please call the Chair, Mark on: 07741 538773
Refreshments, including hot and cold food and drinks are available for purchase before the meeting at the Manor. If this is your first meeting, then look out for those people wearing a purple badge lanyard- they will help introduce you to everyone.
Fostering Psychological Safety in Our Fibromyalgia Support Community
As we journey together with Fibromyalgia, it’s vital that our meetings and online spaces remain safe and supportive for all. We’re dedicated to creating an environment where everyone can share without fear of judgment. Our next meeting will focus on maintaining these psychologically safe spaces, emphasizing the importance of sharing without oversharing and fostering constructive critique without personal criticism.
The Role of Mental Health First Aiders
Our mental health first aiders are here to provide basic support and guide you to professional resources when needed. They play a crucial role but are not substitutes for trained counsellors or therapists.
Safeguarding Our Community
We’re developing a safeguarding policy to address serious mental health concerns, ensuring the safety and well-being of our community. This policy will help us responsibly share information with healthcare agencies when someone is at risk.
Our Purpose and Changes Ahead
Fibromyalgia Friends Together is a support group, distinct from campaigning organizations like Fibromyalgia Action UK. Due to the pressure on our volunteers, we can no longer offer benefits advice but will continue providing resources and support sessions for benefit applications.
We’re here to provide mutual support, share information, and build a community. Let’s continue to thrive together in a safe, supportive, and respectful environment.
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We support people with Fibromyalgia, their carers, families and friends and we raise awareness of Fibromyalgia.