This privacy statement was last changed on 14 March 2024, last checked on 14 March 2024, and applies to citizens and legal permanent residents of Canada.
In this privacy statement, we explain what we do with the data we obtain about you via https://fibro.org.uk. We recommend you carefully read this statement. In our processing we comply with the requirements of privacy legislation. That means, among other things, that:
- we clearly state the purposes for which we process personal data. We do this by means of this privacy statement;
- we aim to limit our collection of personal data to only the personal data required for legitimate purposes;
- we first request your explicit consent to process your personal data in cases requiring your consent;
- we take appropriate security measures to protect your personal data and also require this from parties that process personal data on our behalf;
- we respect your right to access your personal data or have it corrected or deleted, at your request.
1. Purpose and categories of data
We may collect or receive personal information for a number of purposes connected with our business operations which may include the following: (click to expand)
1.1 Contact - Through phone, mail, email and/or webforms
1.1 Contact - Through phone, mail, email and/or webforms
The following categories of data are collected
- A first and last name
- A home or other physical address, including street name and name of a city or town
- An email address
- A telephone number
Retention period
We determine the retention period according to fixed objective criteria: three months
1.2 Newsletters
1.2 Newsletters
The following categories of data are collected
- A first and last name
- An email address
- A home or other physical address, including street name and name of a city or town
- A telephone number
- Marital status
Retention period
Upon termination of the service we retain this data for the following period: three years.
1.3 To be able to comply with legal obligations
1.3 To be able to comply with legal obligations
The following categories of data are collected
- A first and last name
- A home or other physical address, including street name and name of a city or town
- An email address
- A telephone number
- Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
Retention period
Upon termination of the service we retain this data for the following period: three years.
1.4 Compiling and analyzing statistics for website improvement.
1.4 Compiling and analyzing statistics for website improvement.
The following categories of data are collected
- Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
- IP Address
Retention period
Upon termination of the service we retain this data for the following period: three years.
2. Disclosure practices
We disclose personal information if we are required by law or by a court order, in response to a law enforcement agency, to the extent permitted under other provisions of law, to provide information, or for an investigation on a matter related to public safety.
If our website or organisation is taken over, sold, or involved in a merger or acquisition, your details may be disclosed to our advisers and any prospective purchasers and will be passed on to the new owners.
3. How we respond to Do Not Track signals & Global Privacy Control
Our website responds to and supports the Do Not Track (DNT) header request field. If you turn DNT on in your browser, those preferences are communicated to us in the HTTP request header, and we will not track your browsing behavior.
4. Cookies
Our website uses cookies. For more information about cookies, please refer to our Cookie Policy on our Cookie Policy (CA) webpage.
5. Security
We are committed to the security of personal data. We take appropriate security measures to limit abuse of and unauthorized access to personal data. This ensures that only the necessary persons have access to your data, that access to the data is protected, and that our security measures are regularly reviewed.
6. Third party websites
This privacy statement does not apply to third party websites connected by links on our website. We cannot guarantee that these third parties handle your personal data in a reliable or secure manner. We recommend you read the privacy statements of these websites prior to making use of these websites.
7. Amendments to this privacy statement
We reserve the right to make amendments to this privacy statement. It is recommended that you consult this privacy statement regularly in order to be aware of any changes. In addition, we will actively inform you wherever possible.
8. Accessing and modifying your data
If you have any questions or want to know which personal data we have about you, please contact us. Please make sure to always clearly state who you are, so that we can be certain that we do not modify or delete any data of the wrong person. We shall provide the requested information only upon receipt of a verifiable consumer request. You can contact us by using the information below.
8.1 You have the following rights with respect to your personal data
- You may submit a request for access to the data we process about you.
- You may request an overview, in a commonly used format, of the data we process about you.
- You may request correction or deletion of the data if it is incorrect or not or no longer relevant. Where appropriate, the amended information shall be transmitted to third parties having access to the information in question.
- You have the right to withdraw consent at any time, subject to legal or contractual restrictions and reasonable notice. You will be informed of the implications of such withdrawal.
- You have the right to address a challenge concerning non-compliance with PIPEDA to our organization and, if the issue is not resolved, to the Office of the Privacy Commissioner of Canada.
- We shall give access to personal information in an alternative format to an individual with a sensory disability who has a right of access to personal information under PIPEDA and who requests that it be transmitted in the alternative format if (a) a version of the information already exists in that format; or (b) its conversion into that format is reasonable and necessary in order for the individual to be able to exercise rights.
9. Children
Our website is not designed to attract children and it is not our intent to collect personal data from children under the age of consent in their country of residence. We therefore request that children under the age of consent do not submit any personal data to us.
10. Contact details
Fibromyalgia Friends Together
5 Oakley Close
Shepshed, Loughborough
United Kingdom
Website: https://fibro.org.uk
Email: chair@fibro.org.uk
Phone number: 01162988007
We have appointed a contact person for the organization’s policies and practices and to whom complaints or inquiries can be forwarded:
chair@fibro.org.uk
5 Oakley Close
Shepshed, Loughborough
Annex
Burst Statistics
This website uses Burst Statistics, a Privacy-Friendly Statistics Tool to analyse visitor behaviour. For this functionality we (this website) collect anonymised data, stored locally without sharing it with other parties. For more information, please read the Privacy Statement from Burst Statistics.
Complianz | The Privacy Suite for WordPress
This website uses the Privacy Suite for WordPress by Complianz to collect and record Browser and Device-based Consent. For this functionality, your IP address is anonymized and stored in our database. This service does not process any personally identifiable information and does not share any data with the service provider. For more information, see the Complianz Privacy Statement.
Akismet
We collect information about visitors who comment on sites that use our Akismet Anti-spam service. The information we collect depends on how the user sets up Akismet for the site, but typically includes the commenter's IP address, user agent, referrer, and site URL (along with other information directly provided by the commenter such as their name, username, email address, and the comment itself).