This privacy statement was last updated on 14 March 2024 and applies to citizens and legal permanent residents of South Africa.
In this privacy statement, we explain what we do with the data we obtain about you via https://fibro.org.uk. We recommend you carefully read this statement. In our processing we comply with the requirements of privacy legislation. That means, among other things, that:
- we clearly state the purposes for which we process personal data. We do this by means of this privacy statement;
- we aim to limit our collection of personal data to only the personal data required for legitimate purposes;
- we first request your explicit consent to process your personal data in cases requiring your consent;
- we take appropriate security measures to protect your personal data and also require this from parties that process personal data on our behalf;
- we respect your right to access your personal data or have it corrected or deleted, at your request.
If you have any questions, or want to know exactly what data we keep of you, please contact us.
1. Purpose, data and retention period
We may collect or receive personal information for a number of purposes connected with our business operations which may include the following: (click to expand)1.1 Contact - Through phone, mail, email and/or webforms
1.1 Contact - Through phone, mail, email and/or webforms
For this purpose we use the following data:
- A first and last name
- A home or other physical address, including street name and name of a city or town
- An email address
- A telephone number
Retention period
We determine the retention period according to fixed objective criteria: three months
1.2 Newsletters
1.2 Newsletters
For this purpose we use the following data:
- A first and last name
- An email address
- A home or other physical address, including street name and name of a city or town
- A telephone number
- Marital status
Retention period
Upon termination of the service we retain this data for the following period: three years.
1.3 To be able to comply with legal obligations
1.3 To be able to comply with legal obligations
The collection is required or authorized by the following law or court/tribunal order:
For this purpose we use the following data:
- A first and last name
- A home or other physical address, including street name and name of a city or town
- An email address
- A telephone number
- Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
Retention period
Upon termination of the service we retain this data for the following period: three years.
1.4 Compiling and analyzing statistics for website improvement.
1.4 Compiling and analyzing statistics for website improvement.
For this purpose we use the following data:
- Internet activity information, including, but not limited to, browsing history, search history, and information regarding a consumer's interaction with an Internet Web site, application, or advertisement
- IP Address
Retention period
Upon termination of the service we retain this data for the following period: three years.
2. What if you don't provide us with your personal information?
If you don't provide us with your personal information, we may not be able to provide you with the information, products or assistance that you are seeking.
3. Cookies
Our website uses cookies. For more information about cookies, please refer to our Cookie Policy.4. Disclosure practices
We disclose personal information if we are required by law or by a court order, in response to a law enforcement agency, to the extent permitted under other provisions of law, to provide information, or for an investigation on a matter related to public safety.
If our website or organisation is taken over, sold, or involved in a merger or acquisition, your details may be disclosed to our advisers and any prospective purchasers and will be passed on to the new owners.
5. Security
We are committed to the security of personal data. We take appropriate security measures to limit abuse of and unauthorised access to personal data. This ensures that only the necessary persons have access to your data, that access to the data is protected, and that our security measures are regularly reviewed.6. Third-party websites
This privacy statement does not apply to third-party websites connected by links on our website. We cannot guarantee that these third parties handle your personal data in a reliable or secure manner. We recommend you read the privacy statements of these websites prior to making use of these websites.7. Amendments to this privacy statement
We reserve the right to make amendments to this privacy statement. It is recommended that you consult this privacy statement regularly in order to be aware of any changes. In addition, we will actively inform you wherever possible.8. Accessing and modifying your data
If you have any questions or want to know which personal data we have about you, please contact us. You can contact us by using the information below. You have the following rights:
- You have the right to know why your personal data is needed, what will happen to it, and how long it will be retained for.
- Right of access: You have the right to access your personal data that is known to us.
- Right to rectification: you have the right to supplement, correct, have deleted or blocked your personal data whenever you wish.
- If you give us your consent to process your data, you have the right to revoke that consent and to have your personal data deleted.
- Right to object: you may object to the processing of your data. We comply with this, unless there are justified grounds for processing.
Please make sure to always clearly state who you are, so that we can be certain that we do not modify or delete any data of the wrong person.
9. Submitting a complaint
If you are not satisfied with the way in which we handle (a complaint about) the processing of your personal data, you have the right to submit a complaint to the Information Regulator South Africa:P.O Box 31533,
Braamfontein,
Johannesburg,
2017
Complaints email:complaints.IR@justice.gov.za
10. Children
Our website is not designed to attract children and it is not our intent to collect personal data from children under the age of consent in their country of residence. We therefore request that children under the age of consent do not submit any personal data to us.
11. Contact details
Fibromyalgia Friends Together
5 Oakley Close
Shepshed, Loughborough
United Kingdom
Website: https://fibro.org.uk
Email: chair@fibro.org.uk
Phone number: 01162988007
We have appointed a contact person for the organization’s policies and practices and to whom complaints or inquiries can be forwarded:
chair@fibro.org.uk
5 Oakley Close
Shepshed, Loughborough
Annex
Burst Statistics
This website uses Burst Statistics, a Privacy-Friendly Statistics Tool to analyse visitor behaviour. For this functionality we (this website) collect anonymised data, stored locally without sharing it with other parties. For more information, please read the Privacy Statement from Burst Statistics.
Complianz | The Privacy Suite for WordPress
This website uses the Privacy Suite for WordPress by Complianz to collect and record Browser and Device-based Consent. For this functionality, your IP address is anonymized and stored in our database. This service does not process any personally identifiable information and does not share any data with the service provider. For more information, see the Complianz Privacy Statement.
Akismet
We collect information about visitors who comment on sites that use our Akismet Anti-spam service. The information we collect depends on how the user sets up Akismet for the site, but typically includes the commenter's IP address, user agent, referrer, and site URL (along with other information directly provided by the commenter such as their name, username, email address, and the comment itself).