Fibromyalgia Friends Together is pleased to announce the launch of a new website page: Research About Fibromyalgia. This page brings together research summaries, patient‑experience findings, and practical resources to help people living with fibromyalgia, their families, and health professionals find reliable, accessible evidence in one place.
What you’ll find on the page
- Summaries of key studies and patient‑experience research relevant to fibromyalgia.
- Our organisation’s research partnerships and contributions, including the 2017 Healthwatch patient survey.
- Practical takeaways linking research to everyday management, diagnosis issues, and local support needs.
- Guidance and signposting to trusted external reports and services.
Why this matters Research helps turn lived experience into better services and clearer information. The Research About Fibromyalgia page is designed to:
- Improve access to trustworthy evidence for people with fibromyalgia.
- Highlight gaps in diagnosis, care, and local support so we can advocate for change.
- Connect research findings to practical support, from self‑management tips to local groups.
How you can help
- Read the new page to learn more about the evidence and what it means for people living with fibromyalgia.
- Share your experience so future research reflects real needs.
- Join our support groups or volunteer to help shape services and awareness locally.
Read the page now: https://fibro.org.uk/about-fibromyalgia/research-into-fibromyalgia/
Key Points at a Glance
- Central hub for fibromyalgia research and lived‑experience evidence.
- Includes our 2017 partnership study and other relevant research summaries.
- Actionable guidance for patients, carers, and clinicians.
- Calls to action for sharing experiences and getting involved.
