by Cara N | Aug 2, 2026 | About Fibromyalgia, Awareness, Research
A major international fibromyalgia research study has identified new genetic risk factors linked to fibromyalgia, offering fresh hope for earlier diagnosis, better understanding, and future treatment options. For many people living with fibromyalgia, a condition often misunderstood or dismissed. This research represents an important step forward.
👉 You can read the original news report here: The Independent – “New genetic risk factors linked to chronic pain disorder in study” https://www.independent.co.uk/news/health/fibromyalgia-genetic-risk-factors-study-b2589287.html
What the Fibromyalgia Research Study Found
Researchers analysed DNA from more than two million people across the UK, US, Finland, Denmark, Iceland and Estonia. Their findings show:
- 26 genetic regions are associated with an increased risk of developing fibromyalgia
- The condition is strongly linked to differences in pain‑processing pathways in the nervous system
- A notable connection with the HTT gene, which is also involved in Huntington’s disease, meaning existing drug research may one day benefit people with fibromyalgia
- Genetic similarities with other chronic pain conditions such as lower back pain and IBS
Experts involved in the study emphasised that these findings confirm fibromyalgia has a clear biological basis, countering decades of stigma and misunderstanding.
Why This Fibromyalgia Research and Findings Matter
For years, many people with fibromyalgia have struggled to be believed, understood, or properly supported. This research:
- Helps strengthens recognition of fibromyalgia as a real, biologically‑driven condition
- Helps explain why fibromyalgia often appears alongside anxiety, depression, IBS, and other chronic pain syndromes
- It potentially opens the door to new treatment pathways, including potential therapies already being explored for other neurological conditions
- Encourages further research into environmental triggers, life events, and neural changes that contribute to fibromyalgia
What This Means for Our Community
At Fibromyalgia Friends Together, we know how important it is for people to feel validated and supported. This study reinforces what our community has always known: fibromyalgia is real, complex, and deserving of serious medical and societal attention.
We will therefore continue to push for more research into Fibromyalgia and to continue to advocate for the needs of our community.
We will continue to follow developments closely and share updates as new research emerges.
Find out about our Fibromyalgia Research here research-into-fibromyalgia
by Mark F | May 17, 2026 | About Fibromyalgia, Fibromyalgia Support Meetings
Personal Stories: Living with Fibromyalgia
Our next in person meeting is Monday 18th May 2026
And a quick reminder to please Nominate Us in the Movement for Good Health and Wellbeing Draw
We will be ask you to share our experiences at this meeting, of living with Fibromyalgia to inform
our research with Loughborough University.
Our meetings take place at Bright Hope House, in Swannington. Leicestershire.
You can access the room from 12pm till 3pm. With our meeting starting at 1.15pm. I
f you cannot find us, call: 07825 610925
Our next in person meeting is Monday 18th May 2026
We will be ask you to share our experiences at this meeting, of living with Fibromyalgia to inform our research with Loughborough University.
Our meetings take place at Bright Hope House, in Swannington. Leicestershire. You can access the room from 12pm till 3pm. With our meeting starting at 1.15pm. If you cannot find us, call: 07825 610925
Here is a message from Nadia, who is carrying out the research:
At the last meeting, Mark and I introduced a project we are working on with Dr Roger Newport at Loughborough University on Fibromyalgia and we asked for your help!
For those who were unable to make the session (or would like a refresher), the aim of the project is to get a better understanding of the lived experience in Leicestershire of Fibromyalgia symptoms beyond medical descriptions typically used for diagnosis. We intend to use this work to raise awareness of Fibromyalgia symptoms.
We will be speaking to those with fibromyalgia as well as with healthcare professionals to get two perspectives on this.
When can I do this?
We plan to run this at the next in person group meeting (on Monday).
If you have already made something, please do bring it along!
There is no obligation to take part, but the more who feel able to, the better for the project overall.
You are also welcome to take supplies home and make something at home if you are more comfortable.
We would need these returning to us at the June meeting.
If you are unable to come to the meetings, but would like to take part, please let me know: [email protected]
Thank you so much for being involved - I know it is a big ask, but we’re hoping this will be a meaningful contribution to the wider conversation and awareness of fibromyalgia.
If you have any questions, please drop me a line: [email protected]
Many thanks,
Nadia
Some examples how others represent their illness through artwork to give you an idea:
We’re excited to share that Fibromyalgia Friends Together has been entered into the Movement for Good Health and Wellbeing nomination programme. This special draw, run by the Benefact Group, awards £5,000 to ten charities supporting health and wellbeing across the UK. Your nomination could help us continue providing vital support to people living with fibromyalgia.
At Fibromyalgia Friends Together, we work to reduce isolation, offer peer support, and create a safe community for anyone affected by fibromyalgia. A £5,000 award would allow us to expand our services, reach more people, and continue offering free resources to those who need them most.
Why Your Movement for Good Health and Wellbeing Nomination Matters
The Movement for Good Health and Wellbeing nomination draw is only open for 14 days, and every single nomination counts. As a small charity, community support makes a huge difference to us. By taking just one minute to nominate us, you help strengthen our work and ensure more people living with chronic pain receive the understanding and support they deserve.
How to Nominate Fibromyalgia Friends Together
Visit the Movement for Good website. 👉 Nominate us here:
https://movementforgood.com/health
Search for: Fibromyalgia Friends Together (Charity No. 1210681).
Submit your nomination: it takes less than a minute.
Thank you for supporting our community. Together, we can make a meaningful difference.
by Cara N | Apr 22, 2026 | About Fibromyalgia, Awareness
We are thrilled to announce the launch of the Fibromyalgia Friends Together YouTube channel!
In our very first video, our Chair, Mark Farmer, provides a comprehensive overview answering the crucial question:
What is Fibromyalgia?
Whether you are living with the condition, seeking a diagnosis, or supporting a loved one, this video breaks down everything you need to know about this often misunderstood and invisible illness.
Key topics briefly covered in our first video:
- How fibromyalgia affects the nervous system and processes pain.
- The prevalence of the condition and common misdiagnoses.
- A closer look at widespread pain and extreme tiredness.
- An insight into understanding 'Fibro Fog' and cognitive difficulties.
- Why having an open conversation with your GP is essential.
Watch the full video here: https://www.youtube.com/watch?v=J4_m7LbS0SI
Over the coming months will be adding more content so do not forget to subscribe to our new channel to help support our community!
You can subscribe to our channel at:
