Personal Stories: Living with Fibromyalgia

by Mark F | May 17, 2026 | About Fibromyalgia, Fibromyalgia Support Meetings

Personal Stories: Living with Fibromyalgia

Our next in person meeting is Monday 18th May 2026

And a quick reminder to please Nominate Us in the Movement for Good Health and Wellbeing Draw

We will be ask you to share our experiences at this meeting, of living with Fibromyalgia to inform
our research with Loughborough University.

Our meetings take place at Bright Hope House, in Swannington. Leicestershire. 
You can access the room from 12pm till 3pm. With our meeting starting at 1.15pm. I
f you cannot find us, call: 07825 610925

Our next in person meeting is Monday 18th May 2026

We will be ask you to share our experiences at this meeting, of living with Fibromyalgia to inform our research with Loughborough University.

Our meetings take place at Bright Hope House, in Swannington. Leicestershire. You can access the room from 12pm till 3pm. With our meeting starting at 1.15pm. If you cannot find us, call: 07825 610925

Here is a message from Nadia, who is carrying out the research:

At the last meeting, Mark and I introduced a project we are working on with Dr Roger Newport at Loughborough University on Fibromyalgia  and we asked for your help!

For those who were unable to make the session (or would like a refresher), the aim of the project is to get a better understanding of the lived experience in Leicestershire of Fibromyalgia symptoms beyond medical descriptions typically used for diagnosis. We intend to use this work to raise awareness of Fibromyalgia symptoms.

We will be speaking to those with fibromyalgia as well as with healthcare professionals to get two perspectives on this.

When can I do this?

We plan to run this at the next in person group meeting (on Monday).

If you have already made something, please do bring it along!

There is no obligation to take part, but the more who feel able to, the better for the project overall.

You are also welcome to take supplies home and make something at home if you are more comfortable.

We would need these returning to us at the June meeting.

If you are unable to come to the meetings, but would like to take part, please let me know: [email protected]

Thank you so much for being involved - I know it is a big ask, but we’re hoping this will be a meaningful contribution to the wider conversation and awareness of fibromyalgia.

If you have any questions, please drop me a line: [email protected] 

Many thanks,
Nadia

Some examples how others represent their illness through artwork to give you an idea:

We’re excited to share that Fibromyalgia Friends Together has been entered into the Movement for Good Health and Wellbeing nomination programme. This special draw, run by the Benefact Group, awards £5,000 to ten charities supporting health and wellbeing across the UK. Your nomination could help us continue providing vital support to people living with fibromyalgia.

At Fibromyalgia Friends Together, we work to reduce isolation, offer peer support, and create a safe community for anyone affected by fibromyalgia. A £5,000 award would allow us to expand our services, reach more people, and continue offering free resources to those who need them most.

Why Your Movement for Good Health and Wellbeing Nomination Matters

The Movement for Good Health and Wellbeing nomination draw is only open for 14 days, and every single nomination counts. As a small charity, community support makes a huge difference to us. By taking just one minute to nominate us, you help strengthen our work and ensure more people living with chronic pain receive the understanding and support they deserve.

How to Nominate Fibromyalgia Friends Together

Visit the Movement for Good website. 👉 Nominate us here:
https://movementforgood.com/health

Search for: Fibromyalgia Friends Together (Charity No. 1210681).

Submit your nomination: it takes less than a minute.

Thank you for supporting our community. Together, we can make a meaningful difference.