Leopard with purple butterly on its nose

About Us

About Fibromyalgia

 • Living with Fibromyalgia

 • Videos about Fibromyalgia

 • Pacing

 • Resources

Latest News

Get Help

 • Fibromyalgia Support & Grants

 • Support for Carers

Get Involved

 • Fundraising

 • Previous Supporters

In Person Monthly Meetings

 • Upcoming Events

Contact Us

New Website Page Launched – Research Into Fibromyalgia

New Website Page Launched – Research Into Fibromyalgia

Fibromyalgia Friends Together is pleased to announce the launch of a new website page: Research About Fibromyalgia. This page brings together research summaries, patient‑experience findings, and practical resources to help people living with fibromyalgia, their families, and health professionals find reliable, accessible evidence in one place.

What you’ll find on the page

  • Summaries of key studies and patient‑experience research relevant to fibromyalgia.
  • Our organisation’s research partnerships and contributions, including the 2017 Healthwatch patient survey.
  • Practical takeaways linking research to everyday management, diagnosis issues, and local support needs.
  • Guidance and signposting to trusted external reports and services.

Why this matters Research helps turn lived experience into better services and clearer information. The Research About Fibromyalgia page is designed to:

  • Improve access to trustworthy evidence for people with fibromyalgia.
  • Highlight gaps in diagnosis, care, and local support so we can advocate for change.
  • Connect research findings to practical support, from self‑management tips to local groups.

How you can help

  • Read the new page to learn more about the evidence and what it means for people living with fibromyalgia.
  • Share your experience so future research reflects real needs.
  • Join our support groups or volunteer to help shape services and awareness locally.

Read the page now: https://fibro.org.uk/about-fibromyalgia/research-into-fibromyalgia/

Key Points at a Glance

  • Central hub for fibromyalgia research and lived‑experience evidence.
  • Includes our 2017 partnership study and other relevant research summaries.
  • Actionable guidance for patients, carers, and clinicians.
  • Calls to action for sharing experiences and getting involved.
You Belong Here

You Belong Here

Celebrating Pride at Fibromyalgia Friends Together

June is Pride Month, a time to celebrate the LGBTQ+ community, honour those who fought for the rights many enjoy today, and recommit to building a world where everyone can be themselves without fear.

At Fibromyalgia Friends Together, we know something about what it means to be seen, believed, and accepted. So this month, we wanted to take a moment to celebrate Pride from where we stand as a community built on understanding.

Two experiences that often overlap

Living with fibromyalgia and being part of the LGBTQ+ community can carry a surprisingly similar weight. Both can mean carrying something other people can’t always see. Both can mean explaining yourself, being doubted, or bracing for how others might react before you’ve said a word.

For people who live with both, those experiences don’t sit side by side — they overlap. Navigating healthcare can feel harder when you worry about being judged. Finding spaces where you’re fully accepted, exactly as you are, can take more searching. And the exhaustion of constantly advocating for yourself is something many in our community know all too well.

That’s exactly why community matters so much.

What Pride and our community share

At its heart, Pride is about a simple, powerful idea: you don’t have to hide who you are to be worthy of respect, care, and belonging. That’s a message that resonates deeply here.

Whether it’s an invisible illness or an invisible part of your identity, the longing to be believed and welcomed is universal. The relief of finding people who get it — who don’t need you to perform, explain, or justify yourself — is one of the most healing things there is.

That sense of belonging is what we try to offer every single member, all year round.

“As Chair of Fibromyalgia Friends Together, and as someone who is both part of the LGBTQIA+ community and living with fibromyalgia, this month means a great deal to me. I know what it is to carry things others can’t see, and to long for a place where you don’t have to explain or apologise for who you are. That’s the community I want us to be, one where every part of you is welcome. To anyone reading this who has ever felt unseen: you belong here, and we’re proud to have you with us.”

Mark, Chair, Fibromyalgia Friends Together

A space for all of you

You are welcome here as your whole self. Your fibromyalgia is part of your story, and so is everything else that makes you you, your identity, who you love, and how you move through the world.

This Pride Month, and every month, our promise is the same: this is a place where you don’t have to leave any part of yourself at the door.

Looking after yourself this Pride season

Pride can be joyful, but celebrations, busy events, and big emotions can also take a toll — especially when fatigue and pain are part of daily life. A few gentle reminders:

  • Rest is not giving up. Pacing yourself so you can enjoy what matters most is a form of strength, not weakness.
  • You set the terms. You can celebrate quietly, loudly, in person, online, or not at all. There’s no single right way to mark Pride.
  • Reach out if you need to. Whether you’re celebrating, struggling, or somewhere in between, you don’t have to do it alone.

Happy Pride 🌈

To every member of our community who is part of the LGBTQ+ family, and to everyone who stands alongside them: we see you, we believe you, and we are so glad you’re here.

Happy Pride Month from all of us at Fibromyalgia Friends Together.

Research with Loughborough University

Closing the gap for people living with Fibromyalgia  

Our communications officer, Nadia, is on a research training placement with Loughborough University and Fibromyalgia. 

The aim of her research to capture and reveal the
invisible symptoms of Fibromyalgia to change attitudes, beliefs and understanding in those who diagnose, treat, care for, work with, or live with, people living with Fibromyalgia in Leicestershire. She will work to create a public-facing communication to highlight the differences and/or similarities  between healthcare perceptions and lived
experiences.  She is planning to do this through collecting information about the perception of fibromyalgia from local healthcare professionals.  Working with people living with Fibromyalgia she will support them to represent their experiences through artistic or other creative methods.  

We have received a donation!

We have received a donation!

Fibromyalgia Friends Together is pleased to report that we have received a donation from Fibromyalgia Scotland, who's Trustees decided that due to health, they were no longer sadly able to keep their organisation going.  We are overwhelmed by their generosity receiving a donation from them of over £8,000!  This boost to our resources will mainly be used towards our core running costs, to enable more people to access our services and to raise awareness of Fibromyalgia.   

A donation celebration banner

The Lightbulb project in Leicestershire at our Feburary 2026

We are looking forward to welcoming you to our next Fibromyalgia Friends Together meeting this coming Monday!

This month, we are delighted to be joined by the Lightbulb Project.

They are a fantastic local service dedicated to helping people stay safe, warm, and independent at home. They will be discussing housing support, including home adaptations, technology to assist with daily living, and general housing advice. It is a great chance to see what practical support is available to make life a little easier.  

Meeting Schedule

Please note the timings for this session. You are welcome to arrive early (from 12pm) to get settled before the formal start at 1.15pm.

  • Doors Open: 12:00 pm

  • Main Meeting Starts: 1:15 pm

  • Close: 3:00 pm

 

Refreshments

Refreshments will be available for purchase before the meeting begins. If you would like tea or coffee, we kindly ask for a donation towards the cost of these.

 

Venue Details

We will be meeting at:

Bright Hope House in North West Leicestershire

Full address: Bright Hope House

Talbot Lane

Swannington

Leicestershire

LE67 8QT  

 Google maps link:  https://www.google.com/maps?ll=52.751526,-1.379759&z=14&t=m&hl=en&gl=US&mapclient=embed&cid=11392077805485891156

 what3words:  ///trying.items.fuses

Look out for people wearing lanyards - if you need any support joining us for the first time or with anything else on the day they can help!  

If you are having problems finding us, then please call 07825 610 925.

We look forward to seeing you there for a cuppa and a chat!

Warm regards,

The Fibromyalgia Friends Together Team