by Mark F | Jun 1, 2026 | Uncategorized
Celebrating Pride at Fibromyalgia Friends Together
June is Pride Month, a time to celebrate the LGBTQ+ community, honour those who fought for the rights many enjoy today, and recommit to building a world where everyone can be themselves without fear.
At Fibromyalgia Friends Together, we know something about what it means to be seen, believed, and accepted. So this month, we wanted to take a moment to celebrate Pride from where we stand as a community built on understanding.
Two experiences that often overlap
Living with fibromyalgia and being part of the LGBTQ+ community can carry a surprisingly similar weight. Both can mean carrying something other people can’t always see. Both can mean explaining yourself, being doubted, or bracing for how others might react before you’ve said a word.
For people who live with both, those experiences don’t sit side by side — they overlap. Navigating healthcare can feel harder when you worry about being judged. Finding spaces where you’re fully accepted, exactly as you are, can take more searching. And the exhaustion of constantly advocating for yourself is something many in our community know all too well.
That’s exactly why community matters so much.
What Pride and our community share
At its heart, Pride is about a simple, powerful idea: you don’t have to hide who you are to be worthy of respect, care, and belonging. That’s a message that resonates deeply here.
Whether it’s an invisible illness or an invisible part of your identity, the longing to be believed and welcomed is universal. The relief of finding people who get it — who don’t need you to perform, explain, or justify yourself — is one of the most healing things there is.
That sense of belonging is what we try to offer every single member, all year round.
“As Chair of Fibromyalgia Friends Together, and as someone who is both part of the LGBTQIA+ community and living with fibromyalgia, this month means a great deal to me. I know what it is to carry things others can’t see, and to long for a place where you don’t have to explain or apologise for who you are. That’s the community I want us to be, one where every part of you is welcome. To anyone reading this who has ever felt unseen: you belong here, and we’re proud to have you with us.”
Mark, Chair, Fibromyalgia Friends Together
A space for all of you
You are welcome here as your whole self. Your fibromyalgia is part of your story, and so is everything else that makes you you, your identity, who you love, and how you move through the world.
This Pride Month, and every month, our promise is the same: this is a place where you don’t have to leave any part of yourself at the door.
Looking after yourself this Pride season
Pride can be joyful, but celebrations, busy events, and big emotions can also take a toll — especially when fatigue and pain are part of daily life. A few gentle reminders:
- Rest is not giving up. Pacing yourself so you can enjoy what matters most is a form of strength, not weakness.
- You set the terms. You can celebrate quietly, loudly, in person, online, or not at all. There’s no single right way to mark Pride.
- Reach out if you need to. Whether you’re celebrating, struggling, or somewhere in between, you don’t have to do it alone.
Happy Pride 🌈
To every member of our community who is part of the LGBTQ+ family, and to everyone who stands alongside them: we see you, we believe you, and we are so glad you’re here.
Happy Pride Month from all of us at Fibromyalgia Friends Together.
by Mark F | Apr 27, 2026 | Uncategorized
Closing the gap for people living with Fibromyalgia
Our communications officer, Nadia, is on a research training placement with Loughborough University and Fibromyalgia.
The aim of her research to capture and reveal the
invisible symptoms of Fibromyalgia to change attitudes, beliefs and understanding in those who diagnose, treat, care for, work with, or live with, people living with Fibromyalgia in Leicestershire. She will work to create a public-facing communication to highlight the differences and/or similarities between healthcare perceptions and lived
experiences. She is planning to do this through collecting information about the perception of fibromyalgia from local healthcare professionals. Working with people living with Fibromyalgia she will support them to represent their experiences through artistic or other creative methods.
by Mark F | Feb 21, 2026 | Uncategorized
Fibromyalgia Friends Together is pleased to report that we have received a donation from Fibromyalgia Scotland, who's Trustees decided that due to health, they were no longer sadly able to keep their organisation going. We are overwhelmed by their generosity receiving a donation from them of over £8,000! This boost to our resources will mainly be used towards our core running costs, to enable more people to access our services and to raise awareness of Fibromyalgia.
by Mark F | Feb 12, 2026 | Uncategorized

We are looking forward to welcoming you to our next Fibromyalgia Friends Together meeting this coming Monday!
This month, we are delighted to be joined by the Lightbulb Project.
They are a fantastic local service dedicated to helping people stay safe, warm, and independent at home. They will be discussing housing support, including home adaptations, technology to assist with daily living, and general housing advice. It is a great chance to see what practical support is available to make life a little easier.
Meeting Schedule
Please note the timings for this session. You are welcome to arrive early (from 12pm) to get settled before the formal start at 1.15pm.
Refreshments
Refreshments will be available for purchase before the meeting begins. If you would like tea or coffee, we kindly ask for a donation towards the cost of these.
Venue Details
We will be meeting at:
Bright Hope House in North West Leicestershire
Full address: Bright Hope House
Talbot Lane
Swannington
Leicestershire
LE67 8QT
Google maps link: https://www.google.com/maps?ll=52.751526,-1.379759&z=14&t=m&hl=en&gl=US&mapclient=embed&cid=11392077805485891156
what3words: ///trying.items.fuses
Look out for people wearing lanyards - if you need any support joining us for the first time or with anything else on the day they can help!
If you are having problems finding us, then please call 07825 610 925.
We look forward to seeing you there for a cuppa and a chat!
Warm regards,
The Fibromyalgia Friends Together Team
by Mark F | Jan 19, 2026 | Uncategorized
Pacing, Not Pushing: A Guide to Gentle Goal Setting
January can be a difficult month for those of us living with Fibromyalgia.
The weather is often cold and damp, causing our pain levels to flare, yet the world around us is shouting about "New Year Resolutions," gym memberships, and doing more.
At Fibromyalgia Friends Together, we believe that traditional goal-setting often sets people with chronic illness up to fail. It doesn't account for fatigue, pain, or the unpredictable nature of our condition. It encourages the "Boom and Bust" cycle—doing too much on a good day and paying for it for the next three.
This year, instead of rigid resolutions, we invite you to try Gentle Intentions. Here is a simple tool to help you look ahead without punishing yourself.
The Traffic Light System 🚦
The problem with a standard goal (like "I will declutter the house" or "I will walk for 20 minutes every day") is that it assumes your energy levels are the same every morning. We know that isn't true.
Instead, try setting your intentions using the Traffic Light System. This gives you three different ways to succeed, depending on how many "spoons" you have when you wake up.
🟢 The Green Day Goal (Good Spoons)
This is for days when your pain is manageable and your brain fog is low.
🟠 The Amber Day Goal (Average Days)
This is for the days where you feel "meh." You aren't in a crisis, but you are tired.
🔴 The Red Day Goal (Flare-Up Days)
This is for days when your body is shouting "No."
The Power of "One Tiny Thing"
If the Traffic Light system feels like too much right now, try the concept of One Tiny Thing.
Pick one intention for the year, but make it small. Then, make it smaller.
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Instead of "I will read 20 books," try "I will listen to a story when my eyes hurt."
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Instead of "I will cook from scratch every night," try "I will add one piece of fresh veg to my easy meals."
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Instead of "I will go for a walk," try "I will open the back door and breathe the fresh air for 30 seconds."
A Final Note on Kindness
If you are reading this and feeling the weight of the "New Year, New Me" pressure, please take a deep breath. Your worth is not measured by your productivity. Living with Fibromyalgia is a full-time job in itself.
Be gentle with yourself this year.