Our next in person meeting is Monday 18th May 2026

We will be ask you to share our experiences at this meeting, of living with Fibromyalgia to inform our research with Loughborough University.

Our meetings take place at Bright Hope House, in Swannington. Leicestershire. You can access the room from 12pm till 3pm. With our meeting starting at 1.15pm. If you cannot find us, call: 07825 610925

Here is a message from Nadia, who is carrying out the research:

At the last meeting, Mark and I introduced a project we are working on with Dr Roger Newport at Loughborough University on Fibromyalgia  and we asked for your help!

For those who were unable to make the session (or would like a refresher), the aim of the project is to get a better understanding of the lived experience in Leicestershire of Fibromyalgia symptoms beyond medical descriptions typically used for diagnosis. We intend to use this work to raise awareness of Fibromyalgia symptoms.

We will be speaking to those with fibromyalgia as well as with healthcare professionals to get two perspectives on this.

What do I need to do?

To take part in the project, we would like you to find creative ways to describe the symptoms you experience as people living with fibromyalgia.

These can include physical and/or emotional aspects but should also include aspects of fibromyalgia that you think healthcare providers might not usually consider, ask about or understand.

For example, what does your fibromyalgia feel like to you? How does it affect your day to day?

We aren't looking for works of art (though any hidden talent welcome!).

When can I do this?

We plan to run this at the next in person group meeting (on Monday).

If you have already made something, please do bring it along!

There is no obligation to take part, but the more who feel able to, the better for the project overall.

You are also welcome to take supplies home and make something at home if you are more comfortable.

We would need these returning to us at the June meeting.

If you are unable to come to the meetings, but would like to take part, please let me know: [email protected]

Thank you so much for being involved - I know it is a big ask, but we’re hoping this will be a meaningful contribution to the wider conversation and awareness of fibromyalgia.

If you have any questions, please drop me a line: [email protected] 

Many thanks,
Nadia

Some examples how others represent their illness through artwork to give you an idea: